tag:blogger.com,1999:blog-4384692836709903146.post2177600978049756189..comments2024-03-27T09:55:23.143-07:00Comments on Dispatch from the Digital Health Frontier: Personal Health Record Use by AdolescentsJohn Halamkahttp://www.blogger.com/profile/04550236129132159307noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-4384692836709903146.post-66633409392256808782013-05-17T09:24:31.758-07:002013-05-17T09:24:31.758-07:00What a forward thinking solution! I'm going to...What a forward thinking solution! I'm going to share this with my daughter's providers - even though our healthcare provider is part of an HMO model that regularly publishes about innovation in PHRs, we have no access to her PHR. This has resulted in significant delays in care which put her health at risk as she has a very rare genetic disorder. <br />When I had access to her PHR I could use secure messaging, check labs and monitor immunization status. Those tasks are now nearly impossible as each requires multiple phone calls, time on hold, waiting for call backs, etc. As a working single parent, my time is valuable, so I simply hope for the best!<br />As a clinical informaticist myself, I spent quite a bit of time last year lobbying our provider to change their policy regarding pediatric PHRs. At a minimum, allow parents to use secure messaging. I was told that's never going to happen. Perhaps adolescents are considered to be second class citizens. <br />What would be interesting to follow is how many adolescents voluntarily sign up for a PHR - they've got no memory of ever having one in the past, so why should they bother?pjcphdnoreply@blogger.com