tag:blogger.com,1999:blog-4384692836709903146.post8473737822828804431..comments2024-03-27T09:55:23.143-07:00Comments on Dispatch from the Digital Health Frontier: The Interoperability RoadmapJohn Halamkahttp://www.blogger.com/profile/04550236129132159307noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4384692836709903146.post-14687701058226832072015-02-05T15:31:03.642-08:002015-02-05T15:31:03.642-08:00John, you make some excellent observations about t...John, you make some excellent observations about the strengths and limitations of the interoperability roadmap. As you point out, the roadmap makes the case that the incentives to interoperate need to be increased and the costs decreased, but doesn't provide much specifics on how to do the latter (or, at least, how to do it differently than the approaches that have already been attempted for the past 10+ years). The roadmap does call for generally "simplifying" interoperability standards, but I think some stronger medicine is called for. I've sketched this out in a recently posted opinion piece (http://www.ihealthbeat.org/perspectives/2015/interoperability-failure-to-launch) and would be interested in your thoughts and those of your blog-readers thoughts on those prescriptions. Thanks for summarizing the interoperability roadmap for us!Walter Sujanskyhttps://www.blogger.com/profile/13364589474831718763noreply@blogger.comtag:blogger.com,1999:blog-4384692836709903146.post-34139658207970108222015-02-02T13:03:43.069-08:002015-02-02T13:03:43.069-08:00I had to laugh at the comment about letting states...I had to laugh at the comment about letting states add their input with interoperability, and you are correct as how much more input and how useful would it be. I agree it always important to get input by all means but you do reach a saturation point where some becomes just noise. <br /><br />What I really fear though are the new talks on perficient medicine and of course I don't have any issues with genomic data to help diagnose but they've left open this little gray area which has not yet been defined and everyone wants some of that data input from the web and that's a danger zone too. Right now I got stuck on a clinical trials list that is sold for people who take blood thinners and I can't get it off as I have been repackaged and sold and can't the originator. So, when folks find that information about me out there in error I certainly don't want any garbage from this web world out there to impact any sound clinical or genomic data about me. <br /><br />You can read this informal campaign I have about licensing data sellers so we know who they are, one to be able to find them and get flawed data off the web and second with the fear of this web data in whatever format it arrives is not stolen data either. As we see counterfeit drugs doing this, hacked data, the same thing could happen. <br /><br />Maybe there's a better answer but with the rapid speed we have going out there today, data sources and credibility origins are becoming more important as they don't look at the data, they just import as it can be massive. <br /><br />http://www.youcaring.com/other/help-preserve-our-privacy-/258776<br /><br />Again it's something to me of a concern as HIE start doing apps as well. It's not supposed to get messed up out there but it does. There is no way I would ever want this erroneous information about me being a blood thinner taker anywhere near my clinical data. If one day I did start taking blood thinners it might not be so bad, but now I don't:) I know what the clinical trial phone calls that are blind asking me if I take certain drugs, etc. and those we're stuck with but when they say they have records of me taking blood thinners on file, then I start to worry. <br /><br />Again too I like what Zoeticx is doing with their platform with interops too in the fact that everyone goes to the party together and then when collaboration is done, they all go home so there's only one spot where the records permanently reside without an HIE. I think right now they are a bit in hibernation mode as they have something cooking and developing with authentication and some new use of Apple Kit coming up. Again it may require more work but if the scenario for HIEs goes away with interoperating on the fly, what a lot of money to be saved and the platform can also use and HIE as a data source as well. I read somewhere that both FHIR and non FHIR interops options were on the table to look at for methodologies, so who knows what we will end up with:) Medical Quackhttps://www.blogger.com/profile/12443589277651479846noreply@blogger.com